I received a letter from our healthcare provider offering a special service through Social Security. We are in the process of filing for SSI for Will so I decided to call and see what they had to say. Will is not able to take advantage - we have to go through SSA but they do offer lower income and the elderly options that should be checked out. The company involved is 'Human Arc'.
They have over 25 years of helping people find additional benefits. There is a free discount drug card that you can print out (looks similar to one AAA has) - just make sure you understand how it works! Unless something has changed, when I checked it out for my mom, it was not to be used with other discount plans; only when the other plans did not kick in and drugs were full price, like when you fall into the doughnut hole.
There is a "Benefits Check-up" tab which will lead you to questionnaires to fill out and it says they have over 1500 public and private benefit programs from all 50 states: programs for prescription drugs, food (like SNAP),utility assistance, healthcare, etc. I looked at the questionnaire it looks fairly easy to fill out and submit online.
The "Resource" tab leads you to many national and community services; just click on whatever you need. I tried a few and it worked great.
There under "Hospital Services" it mentions that they offer Medicaid assistance for adoption services. They list a variety of benefits from medical coverage, flexibility, no geographical limitations.
All in all, this is a good website to look at to see if you can take advantage of what they offer. Questions?? Lots of email addresses to use. We had a toll-free number on our letter but I only saw one for drug benefits on their website. Anyway the number I had, I left a message for them to call me back, but they never did. The next time I called, their voice mail said I had to wait about 10 minutes but it was only about 3 minutes. So I guess it depends on the day you call.
National Stroke Awareness Month
There are approximately 795,000 strokes per year. There are symptoms to look for and if people act quickly, you can save lives and limit disabilities. The National Stroke Association recommends learning the FAST technique to identify the potential signs of a stroke. F = FACE: ASK THE PERSON TO SMILE. DOES ONE SIDE OF THE FACE DROOP? A = ARMS: ASK THE PERSON TO RAISE BOTH ARMS. DOES ONE ARM DRIFT DOWNWARD? S = SPEECH: ASK THE PERSON TO REPEAT A SIMPLE SENTENCE. DOES THE SPEECH SOUND SLURRED OR STRANGE? T = TIME: IF YOU OBSERVE ANY OF THESE SIGNS (INDEPENDENTLY OR TOGETHER), CALL 9-1-1 IMMEDIATELY.
Want information on making a home safer for a senior or someone with a disability? Check out our post -- Possible Options for a Safer Home
June 14th is Flag Day, 6/16 is Father's Day, 6/21 is Summer Solstice.
Off-the-beaten-path days (a few from www.holidayinsights.com ) - you can see others on their website: June 3rd is Repeat Day - got it? Repeat Day, 6/4 is Hug Your Cat Day, 6/5 is World Environment Day, 6/9 is Donald Duck Day, 6/15 is National Hollerin' Day, 6/18 is Go Fishing Day, 6/23 is National Pink Day, 6/26 is Forgiveness Day, 6/28 is Paul Bunyon Day, 6/29 is Waffle Iron Day.
There is a panel started by 'Caring.com' that will allow people to sign up and test products and review them and possibly have your remarks published. According to the site, you then get to keep the item. Please check out the recruitment questionaire.
One review that I found was for Presto Computerless E-mail. This device will allow people to send emails, photos, and other attachments to those who might not be tech savvy WITHOUT them needing a computer or internet access. You can check out the reviews both pro and con.
You May Be Able to Get Paid As A Caregiver.
Something I did not know: From 'Caring.com' check this out.
If you're one of more than 70 million people who provide unpaid caregiving for a family member or friend -- either in that person's home or in your own -- you know that the time and energy burden can be enormous. In fact, you may have cut back or given up your paying job. Your smaller (or now nonexistent) paycheck may be pinching you hard. If so, it might be possible for you to get a small but regular payment for your caregiving work.
Here's how: If the parent, spouse, or other person you're caring for is eligible for Medicaid, its Cash and Counseling program, available in some states, can provide direct payments that could go to you. A few other states have similar programs for low-income seniors, even if the person receiving care doesn't quite qualify for Medicaid. Also, if the person you're caring for has long-term care insurance that includes in-home care coverage, in some cases those benefits can be used to pay you. If the person you're caring for will be paying you from any source, it may be a good idea -- for both of you -- to draft a short written contract setting out the terms of your work and payment.
I came across this short movie about Zachery, the oldest son of one of my cousins, who is now in his early 20's. He was diagnosed with epilepsy before the age of 1, starting with seizures around the time he was 6 weeks old. My cousin, Lee Ann - his mom, has been an extremely strong mom, trying to find every possible cure or possible treatment to alliviate his condition. His constant seizures have left him developmentally disabled. Lee Ann has been a big promoter for 'CURE' (Citizens United for Research in Epilepsy), being on the Board of Directors as well as Vice President and Secretary.
Lee Ann has chosen to share Zach's story, hoping it may help others out there. As we have attended her past fundraisers, we have been introduced to other families who have children with this severe form of epilepsy and marvel at their strength, faith, conviction, determination, and of course love. The families have bonded as they continue to search out ways for their children to overcome this disease and hope to carry on a more normal life. I know Lee Ann carries on with her other 2 children making sure they lead their lives, their way, enjoying their own social events, and following their paths into adulthood. She has told me she has wonderful help beyond her family, who love Zach and care for him immensely.
I hope you take the time to watch the full video. I think it is as much about determination and strength as it is about showing us what a debilitating disease epilepsy is. We can only hope for a cure in the near future or some treatment to help those afflicted to gain some control over their life.
Zach's Story . ( a video)
Will & Mom
I was going through some things when considering writing on nursing homes and came across this picture. Willie was able to walk the stage with his peers last June - he'll get his diploma when he leaves in December. Mom was not able to go (this was about a month before she died) but my in-laws were there at the graduation. So we decided to get this picture so Will could have his graduation pictures with his grandparents on both sides. She was Ok this day (she knew what we were doing) and was so proud to see Will in his cap & gown.
A Place for Mom (1) Alzheimer's (10) assisted living (2) autism (2) Caregiver (4) caregivers (4) caregiving (1) caring for parents (1) Caring.com (1) communication (1) CT (1) dementia. (5) developmental delays (1) developmentally disabled (1) disabled (2) elder abuse (1) elderly (11) elderly parents (11) financial (1) iPad (1) Medicaid (2) medical information (1) Medicare (3) memory (3) Memory and Aging (1) MRI (1) nursing home (1) Parkinsons (2) PET (1) presecriptions (1) special needs (2) SSI (2) Transition (3) VNA (1) Will (2)
National Resources. (Not promoting, talk to your professional first)
- American Foundation for the Blind
- Asthma & Allergy Foundation of America
- Attention Deficit Disorder Association: ADDA
- Autism Research Institute: ARI
- Autism Society of America
- Center for Mental Health Services
- Centers for Disease Control & Prevention
- Children & Adults with Attention Deficit/Hyperactivity Disorder: CHADD National Office
- Health Central
- Joint Commission on Accreditation of Healthcare Organizations:JCAHO
- Mayo Clinic
- National Health Information Center
- National Institute of Mental Health
- National Institutes of Health
- National Library Service for the Blind & Physically Handicapped
- National Multiple Sclerosis Society
- Needy Meds
- Online Aspergers Syndrome Information& Support
- Pain Management
- Partners for Prescription Assistance
- Patient Assistance Programs
- Prescription Assistance Programs
- Search & Respond c/o Exceptional Parent Magazine
- US Department of Education