I AM NOT IN THE FINANCIAL OR LEGAL FIELD. I AM ONLY RELAYING INFORMATION AS IT RELATES TO US, HERE IN OUR STATE. PLEASE CONTACT A PROFESSIONAL IN YOUR AREA FOR ADVICE -- SOMEONE WHO SPECIALIZES IN SPECIAL NEEDS TRUSTS; NOT EVERYONE CAN DO IT.
With Will getting closer to 21 and receiving SSI (Supplimental Security Income) from Social Security, there is a need to keep his money for his use. Even though he has another account, we have found that if the money in his account goes over a certain amount, SSI has to stop and will resume when the dollar balance is below the maximum allowed. I have already had to return a months 'pay' since I did not use it (Will did not need much so I couldn't spend it all).
As the attorney told me, if there are other children who may be able to handle this, it may be too overwhelming for them. What if they marry and move away? Can they handle this long distance? Another thing to consider - if there is no trust set up and he/she inherits money, probate court will designate a trustee, it may not be someone or a firm you want. One type of trust may ask for money to be paid back to Medicaid upon death, while another may not. According to our local trusts, there is no maximum or minimum dollar amount to establish the trust but there are fees and you need to be aware of them to determine how much to put in. There MAY BE NO MAXIMUM to how much can be in the trust and it will not affect social security. I was told by someone working for Social Security that the trust is NOT counted for eligibility for SSI. Again, it is ABSOLUTELY NECESSARY that you contact someone who specializes in these types of trusts to help you decide IF and WHICH is best for your child's situation. GOOD LUCK!!
(picture from SSI website)
Sites to look at for information: Plan of Massachusetts and Rhode Island, National Special Needs Network in Pennsylvania
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4 Signs of Caregiving Stress Overload
ElderCarelink email posts 4 signs that should not be overlooked by you, the caregiver, or a close family member or friend. They report that even though the immediate caregiver may not be helping in direct care, the mind is never far from the needs of the older person, thinking about meals, falling, medications. Take the opinion of a family member or friend if they are telling you that you are stressed. Four signs: you skip your own physicals; you isolate yourself from others; you eat and/or drink too much for good health; you are short tempered with the elder, your spouse or your children. If any or all of these sound familiar, take a break no matter how short in order to recharge. For more information on caregiver stress see ElderCarelink
You can check out my ranting and stream of consciousness writing about looking at adult service providers with Will.
A Caregiver's Poem
I was looking through a 'Caregiver's Blog: Senior Care Support' and came across a poem that was shared by a writer, Dana, from the blog. The poem was written by Becky Netherland and Dana's grandmother shared it with her. I thought it was great and there is not much to say about it - just read!!! Enjoy!!
(picture from Caregivers Blog)
I’ve traveled paths you’ve yet to walk
Learned lessons old and new
And now this wisdom of my life
I’m blessed to share with you
Let kindness spread like sunshine
Embrace those who are sad
Respect their dignity, give them joy
And leave them feeling glad
Forgive those who might hurt you
And though you have your pride
Listen closely to their viewpoint
Try to see the other side
Walk softly when you’re angry
Try not to take offense
Invoke your sense of humor
Laughter’s power is immense!
Express what you are feeling
Your beliefs you should uphold
Don’t shy away from what is right
Be courageous and be bold
Keep hope right in your pocket
It will guide you day by day
Take it out when it is needed
When it’s near, you’ll find a way
Remember friends and family
Of which you are a precious part
Love deeply and love truly
Give freely from your heart
The world is far from perfect
There’s conflict and there’s strife
But you still can make a difference
By how you live your life
And so I’m very blessed to know
The wonders you will do
Because you are my granddaughter
And I believe in you.
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