The National Dissemination Center for Children with Disabilities (NICHCY) has listed numerous 'key terms' that parents or guardians should be familiar with as they find their way through the educational system. You will hear and get to participate in these; sometimes they can be trying and tiresome but very necessary; working with people who have a great interest in your child it will seem easy. Make sure people listen to you; I have heard horror stories from some parents but have found when you deal with your child's teacher, speech and occupational therapists, physical therapists if needed, social worker, school nurse, etc, as long as everyone realizes that they are there for your child (not you or them) by keeping it on the child people are more open to listening. Some parents think they have to fight (loud and almost emotionally) to get what they want; parents have to realize they cannot always get what they want when they want it (you don't know the school system and what the parameters are). What I found best was to keep asking periodically, try to demonstrate why your child needs what they need - show them a new task they have learned or what they seem to keep falling back on. Remember YOU, the parent, have to be trying to teach as well - it isn't the teachers who have to teach; you need to reinforce what your child
Anyway back to the terms. For a more involved description please see NICHCY website.
** IDEA: Individuals with Disabilities Education Act. "it guides how special education and related services are provided to children with disabilities in the United States. States develop their own special education policies and procedures based on what IDEA requires. They are allowed to go beyond what IDEA requires–and frequently do, because the law leaves a great many things to state and local discretion–but they are not permitted to have policies or procedures that are not consistent with IDEA’s provisions."
** Child with a disability. Generally speaking "means a child evaluated in accordance with §§300.304 through 300.311 as having an intellectual disability**, a hearing impairment (including deafness), a speech or language impairment, a visual impairment (including blindness), a serious emotional disturbance (referred to in this part as ‘‘emotional disturbance’’), an orthopedic impairment, autism, traumatic brain injury, an other health impairment, a specific learning disability, deaf-blindness, or multiple disabilities, and who, by reason thereof, needs special education and related services."
** FAPE. Free Appropriate Public Education. special education and related services that are provided at public expense, under public supervision and direction, and without charge; meet the standards of the SEA, including the requirements of this part; include an appropriate preschool, elementary school, or secondary school education in the State involved; and are provided in conformity with an individualized education program (IEP) that meets the requirements of §§300.320 through 300.324.
** IEP. Individualized Education Plan. This means "a written statement for each child with a disability that is developed, reviewed, and revised in a meeting", usually held yearly. This gets involved with many facets like measurable goals, what the child will or will not participate in, alternate assessments, adaptive technology, etc., so please read about it on the site.
To learn more terms, go here.
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4 Signs of Caregiving Stress Overload
ElderCarelink email posts 4 signs that should not be overlooked by you, the caregiver, or a close family member or friend. They report that even though the immediate caregiver may not be helping in direct care, the mind is never far from the needs of the older person, thinking about meals, falling, medications. Take the opinion of a family member or friend if they are telling you that you are stressed. Four signs: you skip your own physicals; you isolate yourself from others; you eat and/or drink too much for good health; you are short tempered with the elder, your spouse or your children. If any or all of these sound familiar, take a break no matter how short in order to recharge. For more information on caregiver stress see ElderCarelink
You can check out my ranting and stream of consciousness writing about looking at adult service providers with Will.
A Caregiver's Poem
I was looking through a 'Caregiver's Blog: Senior Care Support' and came across a poem that was shared by a writer, Dana, from the blog. The poem was written by Becky Netherland and Dana's grandmother shared it with her. I thought it was great and there is not much to say about it - just read!!! Enjoy!!
(picture from Caregivers Blog)
I’ve traveled paths you’ve yet to walk
Learned lessons old and new
And now this wisdom of my life
I’m blessed to share with you
Let kindness spread like sunshine
Embrace those who are sad
Respect their dignity, give them joy
And leave them feeling glad
Forgive those who might hurt you
And though you have your pride
Listen closely to their viewpoint
Try to see the other side
Walk softly when you’re angry
Try not to take offense
Invoke your sense of humor
Laughter’s power is immense!
Express what you are feeling
Your beliefs you should uphold
Don’t shy away from what is right
Be courageous and be bold
Keep hope right in your pocket
It will guide you day by day
Take it out when it is needed
When it’s near, you’ll find a way
Remember friends and family
Of which you are a precious part
Love deeply and love truly
Give freely from your heart
The world is far from perfect
There’s conflict and there’s strife
But you still can make a difference
By how you live your life
And so I’m very blessed to know
The wonders you will do
Because you are my granddaughter
And I believe in you.
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