Why can't things be easy....
Make sure you keep copies of everything....
Have personal information handy.....
Get a cup of coffee....
I had my next phone call with someone from the local Social Security Administration the other day to hopefully finish the SSI (Supplemental Security Income) filing. (See first SSI writing under the 'Transition' tab) Our original call was supposed to be on the day we had our blizzard (our office was closed) - I was able to get through to a regional office and a very nice woman gave me another appointment. When I had set the first appointment, the person I spoke to said she had my old information in the system but needed to send me paperwork to fill out and Will to sign (even if it was just an 'X') so they could get medical information from Will's doctors and needed a copy of his bank statement with copies of any receipts of money spent. I sent it back right away so they could have it in time for the call.
The call comes pretty much on time!! The woman starts talking and going over information that was originally there -- I told her that was all done online and the last woman said she saw it. This one tells me the information is only held for 6 months so there is no way it was there and we have to do it all over again!! OKAY!!! Also, I tell her about the paperwork and financials that are there. She can't find it - OKAY....... But finally decides it was probably in a folder for the original day of the call. YEA!!! There is was.
So we go over the banking information and income. Then on to the medical - doctor names and phone numbers, hospital stays, medicines. At least when I filed online last year, I printed out a copy of what I filed. So we were able to go through things fairly quickly. I needed to give some of my and my husband's personal information - social security number, birthdate, since we are guardians.
When all was said and done, the call lasted about 45 minutes. The woman said she would send me a copy of what we had done over the phone (she did - it arrived within a couple of days). She also mentioned it could take between 4-6 months before we had an answer - whether he was approved or not.
So now we wait. Just be ready for an extended process. You can also go to a SSA office - don't know if that would take the same amount of time or less. Maybe call an office first and ask which is better for you.
Sharing information & services we use for our special needs child, Will, and our elderly parents. Exploring more services & inviting others to share their stories with us.
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4 Signs of Caregiving Stress Overload
ElderCarelink email posts 4 signs that should not be overlooked by you, the caregiver, or a close family member or friend. They report that even though the immediate caregiver may not be helping in direct care, the mind is never far from the needs of the older person, thinking about meals, falling, medications. Take the opinion of a family member or friend if they are telling you that you are stressed. Four signs: you skip your own physicals; you isolate yourself from others; you eat and/or drink too much for good health; you are short tempered with the elder, your spouse or your children. If any or all of these sound familiar, take a break no matter how short in order to recharge. For more information on caregiver stress see ElderCarelink
Ranting
You can check out my ranting and stream of consciousness writing about looking at adult service providers with Will.
A Caregiver's Poem
I was looking through a 'Caregiver's Blog: Senior Care Support' and came across a poem that was shared by a writer, Dana, from the blog. The poem was written by Becky Netherland and Dana's grandmother shared it with her. I thought it was great and there is not much to say about it - just read!!! Enjoy!!
(picture from Caregivers Blog)
I’ve traveled paths you’ve yet to walk
Learned lessons old and new
And now this wisdom of my life
I’m blessed to share with you
Let kindness spread like sunshine
Embrace those who are sad
Respect their dignity, give them joy
And leave them feeling glad
Forgive those who might hurt you
And though you have your pride
Listen closely to their viewpoint
Try to see the other side
Walk softly when you’re angry
Try not to take offense
Invoke your sense of humor
Laughter’s power is immense!
Express what you are feeling
Your beliefs you should uphold
Don’t shy away from what is right
Be courageous and be bold
Keep hope right in your pocket
It will guide you day by day
Take it out when it is needed
When it’s near, you’ll find a way
Remember friends and family
Of which you are a precious part
Love deeply and love truly
Give freely from your heart
The world is far from perfect
There’s conflict and there’s strife
But you still can make a difference
By how you live your life
And so I’m very blessed to know
The wonders you will do
Because you are my granddaughter
And I believe in you.
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