(picture from SSA) There was a meeting not to long ago regarding work and SSI & SSDI payments. Since Will collects SSI and is in a day program that tries to find jobs for their clients, like Will, I thought it would be good to attend. They started off by stating that a lot of people collecting do not like to try to work because they feel that they will lose their monthly payments and cannot survive on a part time income. The meeting was to dismiss those thoughts and explain how the two work together. The following a a quick overview - there is a lot to this so please check in with you local office for further information.
First of all let's find out what the difference is between the two. As the Social Security Administration states, SSI (Supplemental Security Income) is 'a program pays benefits to disabled adults and children who have limited income and resources. SSI benefits also are payable to people 65 and older without disabilities who meet the financial limits. People who have worked long enough may also be able to receive Social Security disability or retirement benefits as well as SSI'. SSDI pays benefits to you and certain members of your family if you are "insured," meaning that you worked long enough and paid Social Security taxes. You have to apply to the Social Security Administration for both - check with your child's social worker or teacher to see if there is someone in the system who can help you do this. As Will went through the transition process in high school we were given a social worker who helped us do the forms. Monthly income gets determined through this process. Find out also, as an aside, if you also get medical benefits with the plan, like Medicare or Medicaid.
Some of the myths of what holds people back from working: it will cause my SSI payments to stop - payments may be reduced or suspended but many people continue to receive payments while working. SSA uses a formula to calculate earnings and more than half of person's gross monthly wages are excluded from calculation. There are two exclusions = SSA does not count the first $20 of a person's monthly unearned income - the balance is deducted from earned income. SSA does not count $65 of a person's earned income and half of any remaining income. There is another exclusion if needed - Impairment Related Work Expenses which covers the cost of items and services that are related to your impairment and need for work if you pay for these out-of-pocket and not reimbursed another way. These have to be approved by SSA.
As the meeting went on, the coordinator gave us examples of what happens with income as people find jobs. The following information is from our state, check with your office for your calculations but at least you will have an example. Here is an example of how SSI might work: let's say "Michaela' gets her maximum SSI payment of $733.00 plus from the federal government plus her state $39.92 = $772.92 for the month. Now she gets a job at a local store and earns $800.00 gross for the month. You take the $800.00 minus $85.00 (general and earned income exclusions) = $715.00. You divide this by 2 (2nd part of the earned income exclusion) = $357.50 of countable earned income. Now take her original $733.00 (from the government) plus the $357.50 plus $39.92 (state) plus $800.00 (gross wages) = $1215.42 total income for the month. So instead of just getting $772.92 for the month, 'Michaela' can earn $1215.42, a difference of $442.50 - that she can pocket. There are other deductions that can be taken too: the Impairment Related Work Expenses mentioned above and Blind Related Work Expenses which can cover transportation, service animal expenses, etc.
SSDI is a little different since this allows for trial work periods - 9 months, substantial gainful activity - significant physical or mental work of both & work done for pay or profit, and 36 months after the Trial Work Period comes the Extended Period of Eligibility - which is a safety net for your SSDI payments.
Talk to your local SSA office or social worker to discuss which is the better way to go. They can help you figure how each will impact you financially. This is just a quick overview so please take the time to speak with an SSA staff person or social worker.
Sharing information & services we use for our special needs child, Will, and our elderly parents. Exploring more services & inviting others to share their stories with us.
Showing posts with label Will. Show all posts
Showing posts with label Will. Show all posts
Tuesday, March 1, 2016
Monday, March 10, 2014
Adult services start - finally! It's scary for mom!!! Things I did to make it better for him (and me hopefully).
The first Weekday Mixer was a great success! We had 100 blogs linked up and numerous social media link-ups! We hope that you all had the opportunity to mix and mingle and make some awesome new buddies!
Each week, the Weekday Mixer will start on Sunday nights at 8:00pm and go on until Friday night at 11:59pm. One linker will be chosen each week and featured in the following week's link-up! If chosen, you can provide a brief summary about yourself and your blog/website and all of your social media accounts will be listed. It's a great way to stand out among the crowd!
Now meet this week's featured blogger...
My name is Pamela and I blog over at Macdonald's Playland. My goal is to inspire and help (even in some little way) fellow women, wives, and mommies going through their own journey...all while documenting my own. In this blog I share my creative outlets and a smorgasbord of other topics I enjoy as I adventure through wifehood and motherhood. In my blog you'll find posts on recipes (I'm always rumbly in the tumbly!), fitness (or lack thereof), thoughts on marriage (TMI much?), and lessonsin mothering/parenting (usually it's my child teaching me things!). I also share a lot of crafts/DIY, home decor, party planning, etc. Additionally, I document family adventures, life lessons, my faith, every day randomness, and other Macdonald household shenanigans!
Check out some of my posts:
- My DIY Blog Planner
- Tour my all-white master bedroom (yes, all white..even with a toddler. I laugh in the face of danger)
- Tour my dining room
- Check out the Teddy Bear Picnic Party I threw for my daughter's 1st bday
- Pregnancy updates (we are expecting our 2nd baby...a boy this time!) :)
- How my family and I announced my 2nd pregnancy through a fun stop-motion video
- See how gullible my husband is and how I told him I was pregnant (hint: I'm slick, it was at Disneyland, and I also caught it on video)
- Tour my computer desk space & a DIY milk bottle craft (to make a vase and pen holder)
- See more of the crafts & DIY projects I make such as felt food for my child, busy bags, portable felt boards, etc.
- Add recipes to your recipe book while following along in my attempts at cooking yummy things (like Snicker-Filled Chocolate Pudding Cupcakes!)
Thank you so much to the beautiful and sweet Natasha for choosing to feature my blog this week! I am so happy to be here and look forward to meeting you all! I love meeting fellow bloggers and getting to know my readers! Please come visit my playland , say hi, and enjoy your stay.... even if it doesn't
have much to do with cheeseburgers or a clown (clowns are scary anyway.)



have much to do with cheeseburgers or a clown (clowns are scary anyway.)
And meet your hosts and guest hosts!
Interested in co-hosting the Weekday Mixer?
Fill out this form and Natasha will be in touch with more information.
Fill out this form and Natasha will be in touch with more information.
Now, let's get started...
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Will finally started his adult service program. I love the place! It has been around for a long time and has a great reputation. They spend a lot of time and effort on employment opportunities for the adult with disabilities. During our meetings, everyone was forthcoming with information, asking tons of questions about Will and what he likes, what he can do, what has he done, skills he has, etc., as well as personal hygiene issues, communication, chores. They covered many topics.
Now he begins his journey. The facility is very different from school -- open, busy, noisy -- with lots of new faces. His first day went relatively well. He is part of the RIde program which we normally see as small buses. This is used for older people who cannot drive and disabled adults. Well, I find out they also use taxis when there is no bus available. The first day, I was going to ride with him, so we took the taxi they sent. He was not quite sure what to make of it. I let him take his radio with a larger headset for the ride. When we got to our destination, I took the headphones back (they were too big for his backpack, with everything else that was in there). He was allowed to keep the radio and they would let him use an headset there.
Problem came when he was leaving. Not only did he see many people leaving before him, but they took their headset back. So the taxi driver told me the ride home was not exactly smooth!! I explained this was his first day and the driver was fine. I wasn't so sure about this taxi thing -- I guess I have watched too many Law & Order, CSI, Criminal Minds, and my mind goes thru what if ... What if they make other stops and he tries to get off, what if the driver tries something (Will doesn't speak and is pretty easy), what if someone tries to take something out of his bag, what if they take him to the wrong stop and tell him to get out??
The next day, I take him. I see many taxis when we get there and talk to people. Taxis have been driving their clients for years and there have been no issues. OK..... He has a great day!!! I had purchased earbuds (we had none that worked at home the day before) and let him use those. He did just fine. Again he got anxious seeing other people leave and not him, he had to wait. But the ride home was fine, he even had a young lady in the taxi riding home with him!!!
So 3 areas that popped up that gave us or me problems: the first was the radio, easy - earbuds. The second issue was departing the facility. So I took to his iPad and the 'calender'. I set up the Monday - Friday time period that he is going to be there. So if he gives them a problem, they can point to his schedule: you are here 8:30 - 2:30. I set the next hour for 'wait for ride' since sometimes there may be a delay in pick-up. They can also add to it if he gets anxious about lunch or break or whatever. We also set up an agreement that they can write to me in the 'notes', to let me know how he does. Third is a mommy issue, the trip by himself. I know he is 21 but still s little boy in my eyes. Maybe I would feel better if he spoke. There have been no issues that I know of with people going to centers such as these via outside transportation companies. The local school busses have had more problems!! He seems excited when I told him he could take the ride himself in the morning, so I hope (with his radio working), he'll sit and enjoy the scenery! Lastly - I will try NOT to call the center to make sure he got there OK!!! Which face do I wear today????
Tuesday, August 27, 2013
Thinking About the Future.
I received an email with a post from BrightStar about making sure that everyone, from senior citizens to those with disabilities be allowed to live with dignity and independence in a supportive community. For those in Texas, their agency offers services for senior citizens, those with disabilities, and family caregivers to help people stay in their own homes longer. Contact them directly. Please check with your local social service agencies for possible options for you and your family in your area.
This started me thinking, again (my kids would say 'so that's what that smell is'), what will happen when we get too old to take care of Will?? We have thought of guardianship, the type that will authorize someone to take him in and provide the help he needs. We just haven't thought of anyone we would like to ask yet. Our other 2 boys, we can only hope, will step in but you never know where they will be, if they will have a career that will keep them travelling or moving, if they will have a spouse, who may not be comfortable taking in a special needs person (especially a male who may need personal hygiene help). Some groups homes are very good, others have not been the best for people so you hear through the news or grapevine of families. Kidding we ask our boys about taking care of us in our old age. The response?? We'll find a nice nursing home for you. So again, kidding, I mention to people -- how about an assisted living type of place that will take elderly parents with a special needs son or daughter?? There could be a suite type of 'apartment', in another wing of the community, which would allow parents to continue to live with their son or daughter AND get the help everyone may need!! Respite care is right on the premises, so the parents could get some time off. There could be activities just for the special needs group so they will not disrupt the elderly folks who may not be understanding of the noises or gestures or activities of the son/daughter. Also this way, should one of them need a nursing home placement, hopefully they can stay right in the community, so everyone can visit - constant family contact can be good for all. The displacement that the special needs person finds or feels when a parent 'moves out', will be minimal - they will just be in another room in another building.
I don't know if something like that would work, but it does seem to settle some problems. How this may work financially, not sure. Private pay or will Medicare or Medicaid be able to help. It seems to me, one bill for one placement, for similar services by people already there, would be a great deal. This way too, the family would know that the son or daughter would be taken care of when the parents pass away. Anyone out there think the same?? Anyone familiar with this system want to discuss this further with me??
Tuesday, February 26, 2013
Transition - Filing for SSI Part 2
Why can't things be easy.... 
Make sure you keep copies of everything....
Have personal information handy.....
Get a cup of coffee....
I had my next phone call with someone from the local Social Security Administration the other day to hopefully finish the SSI (Supplemental Security Income) filing. (See first SSI writing under the 'Transition' tab) Our original call was supposed to be on the day we had our blizzard (our office was closed) - I was able to get through to a regional office and a very nice woman gave me another appointment. When I had set the first appointment, the person I spoke to said she had my old information in the system but needed to send me paperwork to fill out and Will to sign (even if it was just an 'X') so they could get medical information from Will's doctors and needed a copy of his bank statement with copies of any receipts of money spent. I sent it back right away so they could have it in time for the call.
The call comes pretty much on time!! The woman starts talking and going over information that was originally there -- I told her that was all done online and the last woman said she saw it. This one tells me the information is only held for 6 months so there is no way it was there and we have to do it all over again!! OKAY!!! Also, I tell her about the paperwork and financials that are there. She can't find it - OKAY....... But finally decides it was probably in a folder for the original day of the call. YEA!!! There is was.
So we go over the banking information and income. Then on to the medical - doctor names and phone numbers, hospital stays, medicines. At least when I filed online last year, I printed out a copy of what I filed. So we were able to go through things fairly quickly. I needed to give some of my and my husband's personal information - social security number, birthdate, since we are guardians.
When all was said and done, the call lasted about 45 minutes. The woman said she would send me a copy of what we had done over the phone (she did - it arrived within a couple of days). She also mentioned it could take between 4-6 months before we had an answer - whether he was approved or not.
So now we wait. Just be ready for an extended process. You can also go to a SSA office - don't know if that would take the same amount of time or less. Maybe call an office first and ask which is better for you.
Make sure you keep copies of everything....
Have personal information handy.....
Get a cup of coffee....
I had my next phone call with someone from the local Social Security Administration the other day to hopefully finish the SSI (Supplemental Security Income) filing. (See first SSI writing under the 'Transition' tab) Our original call was supposed to be on the day we had our blizzard (our office was closed) - I was able to get through to a regional office and a very nice woman gave me another appointment. When I had set the first appointment, the person I spoke to said she had my old information in the system but needed to send me paperwork to fill out and Will to sign (even if it was just an 'X') so they could get medical information from Will's doctors and needed a copy of his bank statement with copies of any receipts of money spent. I sent it back right away so they could have it in time for the call.
The call comes pretty much on time!! The woman starts talking and going over information that was originally there -- I told her that was all done online and the last woman said she saw it. This one tells me the information is only held for 6 months so there is no way it was there and we have to do it all over again!! OKAY!!! Also, I tell her about the paperwork and financials that are there. She can't find it - OKAY....... But finally decides it was probably in a folder for the original day of the call. YEA!!! There is was.
So we go over the banking information and income. Then on to the medical - doctor names and phone numbers, hospital stays, medicines. At least when I filed online last year, I printed out a copy of what I filed. So we were able to go through things fairly quickly. I needed to give some of my and my husband's personal information - social security number, birthdate, since we are guardians.
When all was said and done, the call lasted about 45 minutes. The woman said she would send me a copy of what we had done over the phone (she did - it arrived within a couple of days). She also mentioned it could take between 4-6 months before we had an answer - whether he was approved or not.
So now we wait. Just be ready for an extended process. You can also go to a SSA office - don't know if that would take the same amount of time or less. Maybe call an office first and ask which is better for you.
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4 Signs of Caregiving Stress Overload
ElderCarelink email posts 4 signs that should not be overlooked by you, the caregiver, or a close family member or friend. They report that even though the immediate caregiver may not be helping in direct care, the mind is never far from the needs of the older person, thinking about meals, falling, medications. Take the opinion of a family member or friend if they are telling you that you are stressed. Four signs: you skip your own physicals; you isolate yourself from others; you eat and/or drink too much for good health; you are short tempered with the elder, your spouse or your children. If any or all of these sound familiar, take a break no matter how short in order to recharge. For more information on caregiver stress see ElderCarelink
Ranting
You can check out my ranting and stream of consciousness writing about looking at adult service providers with Will.
A Caregiver's Poem
I was looking through a 'Caregiver's Blog: Senior Care Support' and came across a poem that was shared by a writer, Dana, from the blog. The poem was written by Becky Netherland and Dana's grandmother shared it with her. I thought it was great and there is not much to say about it - just read!!! Enjoy!!
(picture from Caregivers Blog)
I’ve traveled paths you’ve yet to walk
Learned lessons old and new
And now this wisdom of my life
I’m blessed to share with you
Let kindness spread like sunshine
Embrace those who are sad
Respect their dignity, give them joy
And leave them feeling glad
Forgive those who might hurt you
And though you have your pride
Listen closely to their viewpoint
Try to see the other side
Walk softly when you’re angry
Try not to take offense
Invoke your sense of humor
Laughter’s power is immense!
Express what you are feeling
Your beliefs you should uphold
Don’t shy away from what is right
Be courageous and be bold
Keep hope right in your pocket
It will guide you day by day
Take it out when it is needed
When it’s near, you’ll find a way
Remember friends and family
Of which you are a precious part
Love deeply and love truly
Give freely from your heart
The world is far from perfect
There’s conflict and there’s strife
But you still can make a difference
By how you live your life
And so I’m very blessed to know
The wonders you will do
Because you are my granddaughter
And I believe in you.
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