Sharing information & services we use for our special needs child, Will, and our elderly parents. Exploring more services & inviting others to share their stories with us.
Tuesday, August 27, 2013
Thinking About the Future.
I received an email with a post from BrightStar about making sure that everyone, from senior citizens to those with disabilities be allowed to live with dignity and independence in a supportive community. For those in Texas, their agency offers services for senior citizens, those with disabilities, and family caregivers to help people stay in their own homes longer. Contact them directly. Please check with your local social service agencies for possible options for you and your family in your area.
This started me thinking, again (my kids would say 'so that's what that smell is'), what will happen when we get too old to take care of Will?? We have thought of guardianship, the type that will authorize someone to take him in and provide the help he needs. We just haven't thought of anyone we would like to ask yet. Our other 2 boys, we can only hope, will step in but you never know where they will be, if they will have a career that will keep them travelling or moving, if they will have a spouse, who may not be comfortable taking in a special needs person (especially a male who may need personal hygiene help). Some groups homes are very good, others have not been the best for people so you hear through the news or grapevine of families. Kidding we ask our boys about taking care of us in our old age. The response?? We'll find a nice nursing home for you. So again, kidding, I mention to people -- how about an assisted living type of place that will take elderly parents with a special needs son or daughter?? There could be a suite type of 'apartment', in another wing of the community, which would allow parents to continue to live with their son or daughter AND get the help everyone may need!! Respite care is right on the premises, so the parents could get some time off. There could be activities just for the special needs group so they will not disrupt the elderly folks who may not be understanding of the noises or gestures or activities of the son/daughter. Also this way, should one of them need a nursing home placement, hopefully they can stay right in the community, so everyone can visit - constant family contact can be good for all. The displacement that the special needs person finds or feels when a parent 'moves out', will be minimal - they will just be in another room in another building.
I don't know if something like that would work, but it does seem to settle some problems. How this may work financially, not sure. Private pay or will Medicare or Medicaid be able to help. It seems to me, one bill for one placement, for similar services by people already there, would be a great deal. This way too, the family would know that the son or daughter would be taken care of when the parents pass away. Anyone out there think the same?? Anyone familiar with this system want to discuss this further with me??
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ElderCarelink email posts 4 signs that should not be overlooked by you, the caregiver, or a close family member or friend. They report that even though the immediate caregiver may not be helping in direct care, the mind is never far from the needs of the older person, thinking about meals, falling, medications. Take the opinion of a family member or friend if they are telling you that you are stressed. Four signs: you skip your own physicals; you isolate yourself from others; you eat and/or drink too much for good health; you are short tempered with the elder, your spouse or your children. If any or all of these sound familiar, take a break no matter how short in order to recharge. For more information on caregiver stress see ElderCarelink
Ranting
You can check out my ranting and stream of consciousness writing about looking at adult service providers with Will.
A Caregiver's Poem
I was looking through a 'Caregiver's Blog: Senior Care Support' and came across a poem that was shared by a writer, Dana, from the blog. The poem was written by Becky Netherland and Dana's grandmother shared it with her. I thought it was great and there is not much to say about it - just read!!! Enjoy!!
(picture from Caregivers Blog)
I’ve traveled paths you’ve yet to walk
Learned lessons old and new
And now this wisdom of my life
I’m blessed to share with you
Let kindness spread like sunshine
Embrace those who are sad
Respect their dignity, give them joy
And leave them feeling glad
Forgive those who might hurt you
And though you have your pride
Listen closely to their viewpoint
Try to see the other side
Walk softly when you’re angry
Try not to take offense
Invoke your sense of humor
Laughter’s power is immense!
Express what you are feeling
Your beliefs you should uphold
Don’t shy away from what is right
Be courageous and be bold
Keep hope right in your pocket
It will guide you day by day
Take it out when it is needed
When it’s near, you’ll find a way
Remember friends and family
Of which you are a precious part
Love deeply and love truly
Give freely from your heart
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There’s conflict and there’s strife
But you still can make a difference
By how you live your life
And so I’m very blessed to know
The wonders you will do
Because you are my granddaughter
And I believe in you.
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