Showing posts with label Transition. Show all posts
Showing posts with label Transition. Show all posts

Tuesday, March 1, 2016

SSI vs SSDI - Trying to figure it all out!

(picture from SSA) There was a meeting not to long ago regarding work and SSI & SSDI payments. Since Will collects SSI and is in a day program that tries to find jobs for their clients, like Will, I thought it would be good to attend. They started off by stating that a lot of people collecting do not like to try to work because they feel that they will lose their monthly payments and cannot survive on a part time income. The meeting was to dismiss those thoughts and explain how the two work together. The following a a quick overview - there is a lot to this so please check in with you local office for further information.

First of all let's find out what the difference is between the two. As the Social Security Administration states, SSI (Supplemental Security Income) is 'a program pays benefits to disabled adults and children who have limited income and resources. SSI benefits also are payable to people 65 and older without disabilities who meet the financial limits. People who have worked long enough may also be able to receive Social Security disability or retirement benefits as well as SSI'. SSDI pays benefits to you and certain members of your family if you are "insured," meaning that you worked long enough and paid Social Security taxes. You have to apply to the Social Security Administration for both - check with your child's social worker or teacher to see if there is someone in the system who can help you do this. As Will went through the transition process in high school we were given a social worker who helped us do the forms. Monthly income gets determined through this process. Find out also, as an aside, if you also get medical benefits with the plan, like Medicare or Medicaid.

Some of the myths of what holds people back from working: it will cause my SSI payments to stop - payments may be reduced or suspended but many people continue to receive payments while working. SSA uses a formula to calculate earnings and more than half of person's gross monthly wages are excluded from calculation. There are two exclusions = SSA does not count the first $20 of a person's monthly unearned income - the balance is deducted from earned income. SSA does not count $65 of a person's earned income and half of any remaining income. There is another exclusion if needed - Impairment Related Work Expenses which covers the cost of items and services that are related to your impairment and need for work if you pay for these out-of-pocket and not reimbursed another way. These have to be approved by SSA.

As the meeting went on, the coordinator gave us examples of what happens with income as people find jobs. The following information is from our state, check with your office for your calculations but at least you will have an example. Here is an example of how SSI might work: let's say "Michaela' gets her maximum SSI payment of $733.00 plus from the federal government plus her state $39.92 = $772.92 for the month. Now she gets a job at a local store and earns $800.00 gross for the month. You take the $800.00 minus $85.00 (general and earned income exclusions) = $715.00. You divide this by 2 (2nd part of the earned income exclusion) = $357.50 of countable earned income. Now take her original $733.00 (from the government) plus the $357.50 plus $39.92 (state) plus $800.00 (gross wages) = $1215.42 total income for the month. So instead of just getting $772.92 for the month, 'Michaela' can earn $1215.42, a difference of $442.50 - that she can pocket. There are other deductions that can be taken too: the Impairment Related Work Expenses mentioned above and Blind Related Work Expenses which can cover transportation, service animal expenses, etc.


SSDI is a little different since this allows for trial work periods - 9 months, substantial gainful activity - significant physical or mental work of both & work done for pay or profit, and 36 months after the Trial Work Period comes the Extended Period of Eligibility - which is a safety net for your SSDI payments.


Talk to your local SSA office or social worker to discuss which is the better way to go. They can help you figure how each will impact you financially. This is just a quick overview so please take the time to speak with an SSA staff person or social worker.

Tuesday, December 17, 2013

In-Take Meeting for Adult Services.

Well as the end of December appproaches, Will turns 21 and he gets closer to officially graduating; he was able to walk the stage with his peers at the end of his regular senior year. Now he can get his diploma or certificate (whatever the state has decided for our special needs students) and turn to adult day services, which we have been working towards these past months - see transition label. I picked out 2 agencies for him to attend and today we had our first in-take meeting. The John Fogarty Center is for employment 2 days a week. They also offer music, art, computer for both skills and fun. They wanted me to bring Will and he wasn't fazed by the fact it was comperable to being at a Camp David summit meeting. Wow! A good number of staff members were there and believe me, I am not saying this is a bad thing! I thought it was wonderful. Very similar to the past IEP meetings we had. There was our state agency case worker, social workers from the agency, a nurse, the person in charge of the employment program, people in charge of the agency offices. As everyone explained their job and how they were to be involved with Will's program, I came to the conclusion that clients in the program are very well taken care of. Questions and answers went around the room, to Will included so they can see how he handled himself and uses his iPad for communication. His plan goes to the state from here to be approved. In the meantime, we get more forms filled out. He should be eligible to ride a bus, here called the RIde Program, that is designated for people with disabilities and seniors who fill the state's requirements from several different agencies. It may be free or for a small fee. Part of the form is sent to this person's physician, which should not be a problem for him. We now sit and wait for one agency plan to be finalized. In the meantime, I hope to get started working on his second agency, Community Living of RI for 3 days a week. This will be more for social, in the community trips and events. As soon as the word comes down, there will be another meeting to firm up plans here. We looking forward to starting at the end of January, beginning of February. We all know plans can be modified, so if Will needs things changed, it should not be a problem. Everyone so far has been easy to talk to and seem very upfront with information.

Monday, November 4, 2013

A Checklist For Transitioning Parents - What I information I am passing on to other parents.

What? Me? A guest speaker? Will's teacher asked me to speak to other 'transitioning' parents this week at a school meeting, to offer my experiences and tips. As I told her, I hope I can live up to her expectations. This sent me looking through all the paperwork I have accumulated from transition seminars and workshops,
tips from school and information I just searched for, as well as looking over the applications I have already filed. So here is a list I would like to share to others who may be starting their 'adventure' down transition lane or to remind other families in the middle of it that the process can seem like it takes an eternity, can be confusing, can be frustrating (yes - you do have to deal with government agencies) but it is worth it.

Checklist: 1) file for Supplemental Security Income (SSI) - they can start receiving at age 18; 2) check in with the Office of Rehabilitative Services (ORS) which I did about 1 year before leaving and Department of Behavioral Healthcare, Developmental Disabiities & Hospitals (BHDDH) - I started doing this about 10 months before he turns 21; 3) apply for guardianship - this we did at age 18, and healthcare like Medicare or Medicaid - we are doing this now (probably a little later than we should have) with his caseworker; 4) check with your teachers about a vocational assessment being done; 5) get the Supports Intensity Scale (SIS) done - this we did in the late spring of this year. We did this early since someone told me it is a good idea to have his letter of funding with me when we went to visit agencies so they could see what help he is getting and how they can fit. After all these are done, you should be close to your child getting out of school at 21 years of age. Now you start looking at a variety of adult services whether they are day services or residential. Take your child with you so you can ask him/her, if they are verbal, what they like or do not like. If they are like Will, non-verbal, just watch for reactions like if they stop to look at things or seem extra interested in some activity or room; or do they just want to move on and get back to the car. Right now our state is redesigning their work programs so many agencies are not taking names. I was told by some agency directors that it is a good thing I am looking what is considered 'early' at programs because I still have a shot at getting in before more places stop accepting people or can get Will's name in so he can hopefully start fairly quickly after leaving school - there may not be a long span of time staying home and getting 'real comfy'.
We are seeing the light at the end of the tunnel, Will's name is in 2 agencies with people looking over his 'application' - hopefully he will split his time, one for work & one for community time. Besides talking to your child's teachers, go to any and all informational seminars and workshops. They do provide a wealth of information - both written (tons of brochures and booklets) and verbal (lots of agency representitives and don't forget the other parents). Some of these agencies can help you manage your way through all of this as well. I have several other posts regarding our experiences on my other blog so please feel free to check it out: A Lifetime of Special Needs

Monday, September 16, 2013

Documentary on Transition

I received a notice from school that there will be a show, Best Kept Secret, following a special education teacher at the John F. Kennedy High School in Newark, NJ. It follows them for a year and a half prior to their graduation, in other words through transition. "This is a personal story about some young men who live with (autism) and their very dedicated teacher in one remarkable school. It’s about the struggles they face beyond the confines of that school,” said Samantha Buck, the film’s director, who indicated that she was inspired to tell a story about how autism affects those from minority and less-financially-secure backgrounds. 'Best Kept Secret' will open on Friday in theaters in New York and Los Angeles. PBS' POV will broadcast nationally on Sept 23 at 10 pm EST.
Check out more information at disability scoop.

Tuesday, February 26, 2013

Transition - Filing for SSI Part 2

Why can't things be easy....
Make sure you keep copies of everything....
Have personal information handy.....
Get a cup of coffee....

I had my next phone call with someone from the local Social Security Administration the other day to hopefully finish the SSI (Supplemental Security Income) filing. (See first SSI writing under the 'Transition' tab) Our original call was supposed to be on the day we had our blizzard (our office was closed) - I was able to get through to a regional office and a very nice woman gave me another appointment. When I had set the first appointment, the person I spoke to said she had my old information in the system but needed to send me paperwork to fill out and Will to sign (even if it was just an 'X') so they could get medical information from Will's doctors and needed a copy of his bank statement with copies of any receipts of money spent. I sent it back right away so they could have it in time for the call.

The call comes pretty much on time!! The woman starts talking and going over information that was originally there -- I told her that was all done online and the last woman said she saw it. This one tells me the information is only held for 6 months so there is no way it was there and we have to do it all over again!! OKAY!!! Also, I tell her about the paperwork and financials that are there. She can't find it - OKAY....... But finally decides it was probably in a folder for the original day of the call. YEA!!! There is was.

So we go over the banking information and income. Then on to the medical - doctor names and phone numbers, hospital stays, medicines. At least when I filed online last year, I printed out a copy of what I filed. So we were able to go through things fairly quickly. I needed to give some of my and my husband's personal information - social security number, birthdate, since we are guardians.

When all was said and done, the call lasted about 45 minutes. The woman said she would send me a copy of what we had done over the phone (she did - it arrived within a couple of days). She also mentioned it could take between 4-6 months before we had an answer - whether he was approved or not.

So now we wait. Just be ready for an extended process. You can also go to a SSA office - don't know if that would take the same amount of time or less. Maybe call an office first and ask which is better for you.

Monday, February 11, 2013

Getting Ready for Transition.

Will's teacher and I were talking about being organized for the process we are now going through. With Will leaving school in December, I need to make sure I am considering all possibilities. There is so much information that comes out of seminars, it is hard to know what the next step is. So his teacher came out with a checklist, if you will, for those of us getting close. I asked her if I could share it and she said 'yes'.

Please understand this is nothing formal, just a checklist put together quick, things to consider. It does cover what steps come next. So for those families getting ready to enter the final stage of school, take a look at this and see if it helps.


Getting ready for Transition


1. How many hours a week will your child need services?


2. Where do you want your child during the week?
* One agency for 5 days
* 2 agencies (2 days at one, 3 days at another)
* Create your own services
* 1 agency and your own services

3. Where do you want them to be during the week?
* One location
* Out in the community
* Mix of being in the community and in the building

4. What do you want them doing during their week?
* What does your child want to do?
Work, Exercise, Recreation, Shopping,
Hobbies, Cooking, Take classes (read/ write/cook)
Music, Arts, Other: ____________

5. Transportation… Driving, Bus?
* Driver’s Ed… ORS* has a driver’s education assessment program
They will determine if they can be a safe driver.
* Riding public transportation… ORS* can provide travel training
* Separate bus for those with disabilities - Did you complete an application?
You can ask the agency to put the funding for this bus in the support agreement
* Family can transport

6. Go visit 3 or 4 agencies with your child, when they turn 20 - contact your local Support and Service agencies
(check with your ORS* office for names)

7. SSI: students can apply to SSI at age 18. Toll Free Number 1-866-964-2038

8. Call your local Developmental Disability office and ask for Intake (to make sure they have
all of the documents that they need to process the application).

9. ORS*:
* Your child can apply to see if they are eligible for a vocational evaluation.
* They can help you navigate paid employment & benefits.

10. Community Support & Parent: ask your child's teacher for name and number


*Office of Rehabilitative Services

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Grandma’s Pearls of Wisdom:
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I’ve traveled paths you’ve yet to walk
Learned lessons old and new
And now this wisdom of my life
I’m blessed to share with you
Let kindness spread like sunshine
Embrace those who are sad
Respect their dignity, give them joy
And leave them feeling glad
Forgive those who might hurt you
And though you have your pride
Listen closely to their viewpoint
Try to see the other side
Walk softly when you’re angry
Try not to take offense
Invoke your sense of humor
Laughter’s power is immense!
Express what you are feeling
Your beliefs you should uphold
Don’t shy away from what is right
Be courageous and be bold
Keep hope right in your pocket
It will guide you day by day
Take it out when it is needed
When it’s near, you’ll find a way
Remember friends and family
Of which you are a precious part
Love deeply and love truly
Give freely from your heart
The world is far from perfect
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But you still can make a difference
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Because you are my granddaughter
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